Tag Archives: the knock on effect

Back from holiday

3 Aug

Um, ok, been a bit quiet on here for a couple of months. A couple of months….I’m not quite sure how that happened. Partly it was to do with tech problems – wifi, computer running slow, phone playing up. All the various devices which can be used one by one went through hissy fits.

And then it was being busy.

And then it was our holiday.

But we’re back now. And fighting fit. And so we should be – Cal, Chris and I have just canoed 70 km along the Dordogne river, interspersed with lots of walking and food and drink. So despite being probably the most active holiday we’ve ever had as well as being great fun, we’ve also probably consumed the most calories ever. Meanwhile, Sylv sunned herself in Dubai. Because it was hot.

I’m just gathering thoughts for how to raise another £1500 for TKOE to mark 5 years in Sept and also because that way TKOE and Team Kilburn will have raised £50k. So in these hazy restful days of summer, have you got anything to suggest??

Because cancer carries on and people carry on needing help and support. 🙂 🙂

It’s good to be back.

Jo xx

Rosie – not forgotten

20 Feb

Hah! Thank you for the response to the Junior Doctors post. I’ve had a massive response and it’s good to know it’s struck a chord.  The thing is, this is our NHS. We all fund it and have a stake in it. It’s worth showing our support and lobbying where we can.

Now then, surprises are lovely things. These last few weeks there have been a lot of Rosie memories and mentions from all sorts of quarters. A particularly excellent contact came yesterday though from Peter Branson who is the Chief Executive ( is that his title? He’s Very Important, anyway.) of Forget Me Not Childrens Hospice in Yorkshire.

Rosie was very proud of her Yorkshire roots – she was born there and was half Yorkshire. And there is a glass brick in the hospice celebrating Rosie after some TKOE fundraising. Peter showed us round some time ago, but I never expected to get this – what follows are his own words:

“Hi Jo

I hope you and the family are well. It has been a very long time since I have been in touch, but I wanted to drop you a quick email. I have meant to for a while but something prompted me to do so now, as I will explain below.

I often think about something you said a long time ago about Rosie – that one of her fears was that she would be forgotten. I just wanted to let you know that in this small corner of Yorkshire her memory is still very much alive. The block in our Celebration Wall with her words on still shines brightly – and whenever I am showing the wall to anyone I always mention Rosie. But as well as that I thought I would let you know that her name is going to be mentioned next Monday somewhere special. You may have seen that a couple of years ago Princess Beatrice became our Patron – on Monday she is hosting a small lunch at Buckingham Palace for us (only the 2nd one she has done) and I am planning to mention Rosie in the speech I am giving at the event. I didn’t know her so I won’t be saying much about her, but I will be mentioning her briefly – and I thought I would let you know ”

Isnt that just so thoughtful and unexpected and well, just , heart-warming? So, a public thank you to Peter. I hope Monday goes well.

😀😀😀

Jo

 

 

 

Junior doctors

15 Feb

I’ve wanted to write in support of junior doctors for a while. Then yesterday Facebook kindly shared memories of 14th Feb over several years.  This included Rosie having her first internal bleed. Very romantic. So I read her blog for those days. And it reminded me

of the very sweet junior doctor in A and E. Who kept Rosie calm and interested. Who arranged tea and toast for me, at which point I knew this was pretty serious. Who patiently organised a bed on a ward. Who dealt with many more people. And who, several days later, came to find Rosie to see how she was, because she had been so worried about her. Who said hospital was no place for a young girl like Rosie, even though she was not much older herself.

Of the junior doctor who made the call on the night of Rosie’s biggest bleed that whilst she was terminally ill, she was only 19 and it was worth fighting for her to have a bit longer.

Of the junior doctors who answered that call and came in with the consultant that Sunday night, who were so eager and keen to do what they could. Who made Rosie laugh and told her what they’d really like to be doing at 3.00 am in the morning.

Of the junior doctor who was on duty the night Rosie died. Who treated us with such compassion. Who decided Rosie shouldn’t be hooked up to machines for her last hours. Who wept when she had to confirm there was no longer a heart beat.

At the time, it hadn’t really registered that they were junior doctors. But they were. All of them working in those death/life early morning hours, always on a weekend. Taking decisions which gave us those wonderful extra weeks with Rosie, and creating a place where Rosie felt safest. Not at home, but surrounded by people around the age she would be now.

Don’t you think the jobs they do, and the decisions they make are worth more pay than they would earn in a supermarket? Don’t you think they deserve all of us to nurture them and to make their working life as safe as it can be, so they can give the best treatment they can? Don’t you think the government should listen? I know I do.

Jo xx

 

Inspirational-Part 2

24 Jan

Have been loving the newspaper articles about Alice Running for Rosie and Alice’s own story, this week. Drop into the online edition of the Ross Gazette to see what I mean. (This is not me being lazy by not putting a link in – I’m getting you to exercise your internet search muscles 😉).

I have though got another piece of news. We were contacted by Simona from Vienna last week. She was asking if it would be at all possible to link Rosie’s blog to the new website of the new International Cancer Epigenetic Society which launches next month, as it is so inspiring. Woah!

Chris and I always have a brief or long moment at times like these of wondering if it’s been noticed that Rosie has died, and how do we break the news and do people with cancer or an interest in cancer feel uninspired by the fact that Rosie’s story didn’t end with cures or remissions or anything like that.

But then we realised she had contacted me, rather than Rosie, and that Rosie and we found strength and inspiration from loads of different people’s stories and outcomes. And on top of that is the fact that Rosie’s words are inspiring. So of course we said yes.

Epigenetics is a pretty interesting and looking to be promising approach to cancer, so it’s good to be linked to that too. And we were pretty touched that they asked. Not everyone does.

Go Rosie, eh?

Jo xx

 

Guest blog, guest blog – thankyou @EarlMortimer and Tilly

10 Jul

Earl Mortimer College has always been a place in which both students and teachers actively try to help those outside of the College with the intention of demonstrating that the wider community and their needs are just as important as our own. Whether it be a Macmillan Coffee Morning, a Children In Need cake sale or a non-uniform “Feel Good Friday”, we always manage to dig deep and pull it out of the bag to raise vast amounts of money for amazing causes. This year alone, we have been able to raise thousands of pounds in order to help the sick, the vulnerable, the elderly, and many other groups in society, both at home and in faraway places, to get the all-important care and devotion to all of those who are not as lucky as ourselves. With the end of the academic year fast approaching, the Spiritual, Moral, Social and Cultural group had one last, very hard decision to make before kicking off their SMSC boots for the summer… what was the last “feel good” fundraiser of the year going to be in aid of?

After careful research and deliberation, the group came across the story of local girl Rosie Kilburn, who sadly died of cancer, and decided that her organisation, The Knock on Effect, was the worthy cause they were looking for after being inspired by Rosie’s attitude and strength throughout the tribulations she had to face in her life. However, her story is not one of doom and gloom as you may be thinking. Rosie was a fighter, determined to not only combat her illness, but to help others deal with cancer and its effects in the process. She was definitely not a victim of her disease, and she wanted to get rid of the horrid taboo surrounding ‘the big C’ and rather concentrate on the bigger picture; what people could do to help.

Rosie’s mother, Jo Davidson, was our guest speaker at the 2014 Annual Academic Awards evening earlier in the year and shared precious memories of her daughter with many of our students and their families during her speech. This has given us a real insight into the kind of person Rosie was and as a result, many students possess the same admiration for Rosie as the SMSC team do already!

After losing her battle to the disease, The Knock on Effect lives on as an independent organisation in dedication to Rosie and her efforts. It continues to deliver the help others may need to come to terms with their illnesses and encourage progression, rather than ignoring the problem and locking themselves away from the outside world. The Knock on Effect acts on Rosie’s behalf to organise fundraisers to carry on her work, and EMC are proud to say that we are able to take part in fundraising for The Knock on Effect on Friday 11th July.

Students will focus on the wide theme of the spiritual, moral, social and cultural aspects of America and all lessons will be tailored according to this. Cakes will be available to purchase during breaktime and lunchtime on the Friday and there will be an all-American themed lunch in the canteen to accompany this. Furthermore, students can enjoy a round of Extreme Golf on the field, participation will be encouraged and all proceeds will go to The Knock on Effect.

Naturally, there is a US-themed clothing policy that will be enforced for one day only; EMC students have been asked to take advantage of this and dress to impress in all their American themed finery!

External competitions, such a designing a logo or art piece to be used by The Knock on Effect, will be running in conjunction with events at College. The best entries will be shortlisted, and given to Rosie’s organisation to be used on merchandise, such as T-shirts and mugs. They will also be used to auction off later in the year in a bid to raise even more money and enable The Knock on Effect to carry on the terrific work they do.

The SMSC group have high hopes for the drop down day, and are urging all students to get behind it to make Friday 11th a massive success and raise awareness for this local organisation. When I asked Miss Anderson (who is head of the SMSC group) about this day she said:

“I am really excited about this. The students will get to experience exciting lessons and learn about a different culture. It is also a fantastic opportunity for them to engage with each other and strengthen the bonds here at EMC. I am really proud that so many students have thought about why we are doing this and the impact it will have on helping others. The students really took to Rosie’s story and were inspired by her determination and humble nature. This day is about celebrating her achievements and pushing others to break the taboo surrounding illnesses such as cancer. Days like this encourage community spirit and that is something that this College is full of!”

I was really excited when Miss Anderson asked me to write this blog! I hope that by seeing what we have done here at EMC other colleges will be encouraged to fundraise more and help their local organisations help the community. BE INSPIRED, I was!

Tilly Stanik (Year 12)

Hey. Guess what

15 Jan

 You know how some of you use Twitter and Facebook? Well you’ll know what I’m about to tell you. I know though there’s a fair few of you who don’t use them. And I suddenly realised, when I was picking up a lettuce tonight, that you might not know the latest bit of news. I’ve never found lettuces a good thought provider before, but I was grateful that this one was.

Because it’s pretty epic really. (The news, not the lettuce. That was just ordinary)

Did you know, that when you add up all the money you have raised through the inaugural art auction; the TKOE sales, the zumbathons, the Rocks for Rosie, the baby land snail sales, all the other fundraising you’ve done, and all the Race for Life stuff and direct donations, then you’ve raised around about £45,000.

That’s FORTY FIVE THOUSAND POUNDS.

That’s a rate of £850 per month.

That is astounding.

And then if you think that you’ve donated at least 60 units of blood now, you’ve saved or extended the lives of at least 60 people.

Just amazing. You are truly brilliant.

Here’s a celebratory photo Chris just unearthed.

Image

Jo xx

 

 

 

 

 

Time Lord

29 Oct

Being a time lord would be very useful wouldn’t it. I’d go back and see Rosie for sure. I’d be a bit dubious about changing anything in case it did cause some time rift and ended the world.

Being a time lord would also mean you could fit in things you struggle to fit in now. I say all this because I am still operating on British Summer Time and have been awake since 5 despite being tired and needing to catch up on sleep.

We saw a very bouncy Cal at the weekend. For the first time he managed to communicate what he wanted to do while we were with him. This involved lunch in a pub ( 🙂 ). It also involved seeing the film Turbo. He enjoyed it.

He continues to have regular parties. Like a student does.

Then we had a lovely day in Southampton visiting mum and dad and other relatives and found a very good dog friendly pub. Because the TKOE dog came with us too. Chris doesn’t call her the TKOE dog. I cannot write what he calls her. I think he likes her really.

Have a good day.

Jo xx

Coffins, Part II

6 Aug

Didn’t blog earlier because I was joining in the 24 hr Twitter avoidance following the Twitter trolling stuff. Seemed like the right thing to do although I’m a bit conflicted about whether this just gives them the oxygen they need. There are some pretty good mum actions going on though – embarrassing their offspring online, telling them off and so on. Good for mums.

Have just popped in to follow up the coffin situation. Chris checked it out. Turns out they did make some coffins. More than one. For tent poles for a large marquee. BUT…Cal’s interpretation has provided an idea. So that’s good. I was a bit sad when I found out it wasn’t a human coffin. It seemed like such a nice idea to commission it from there.

Do you remember earlier in the year I said TKOE had had a commission. Well I can’t reveal all yet, but it’s completed and everyone is very pleased with the outcome 🙂 :).

We’re off travelling in 5 days. Have I told you where? Maybe not as I can’t quite believe it myself. China. We are going to China. And I don’t like flying. As you know. Me? Anxious ? Nah!

Jo xx

Sylvie’s birthday

21 Apr

She’s 14 today! I don’t know where that time went, but I remember very clearly being in Tesco in Blandford Forum at 2.00pm this afternoon and going into labour and wondering if it was true that you got a year’s supply of nappies if your waters broke. They didn’t and I didn’t ever find out. But that really does seem only like yesterday.

As does me coming home the following day with Rosie and Cal’s new sister, to find that Rosie had decided that she would rather go to her friend’s house for tea than meet her. She always was one for partying.

So, we’ve had a sleepover in the garden, an epic number of pancakes,and the only thing which kept us up were the cats who kept screaming at the door to be let in because the garden was full of people.

And the TKOE bloodometer has zoomed up to 5. Thank you to Morag and Maddie – well done for your first go Maddie.

And TKOE is going to the arts and craft market at The Fold at Bransford, near Worcester on 26 May. Our first of the season and we’re looking forward to it. Mags – any Mags Bags to go on it? Come and see us if you fancy a trip out – there’s a good cafe and some really interesting regular stalls there. As well as TKOE of course 🙂 🙂

Jo xx

P.S – that’s a message to all blog readers at the end there, not just Mags.

Severn FM Radio

21 Dec

The Chief TKOE elf,  being a busy helpful person, put up a lovely Xmas greeting yesterday. Thank you Mike.

And a plug for the TKOE charity song which is going to be released in the new year. If you haven’t noticed on the blog page or the web, go to http://severnfm.com between 8-10 tomorrow morning and you can hear it, pre-release; and you might get to hear me too. Or Chris. We’ve not decided who yet. Maybe both…..And Paul, you’ll hear Paul who’s masterminded the whole thing. That makes him sound like a James Bond villain. He’s not. As far as we know.

The birthday surprise hamper really is beginning to bulge now. New additions, with thanks to Gloucestershire CC Legal and Democratic Services, their prize hat and Andrea; Michelle (again!!!, thank you so much) and Rocks for Rosie, who have raised a huge amount this year and produced some wonderful jewellery in the process.

I’m on holiday and Cal is washing up. Soapily. And, I now detect, noisily. Loud crash and an ‘oh dear’.  Better go and see what’s going on.

Jo xx