Tag Archives: rosie kilburn

Back from holiday

3 Aug

Um, ok, been a bit quiet on here for a couple of months. A couple of months….I’m not quite sure how that happened. Partly it was to do with tech problems – wifi, computer running slow, phone playing up. All the various devices which can be used one by one went through hissy fits.

And then it was being busy.

And then it was our holiday.

But we’re back now. And fighting fit. And so we should be – Cal, Chris and I have just canoed 70 km along the Dordogne river, interspersed with lots of walking and food and drink. So despite being probably the most active holiday we’ve ever had as well as being great fun, we’ve also probably consumed the most calories ever. Meanwhile, Sylv sunned herself in Dubai. Because it was hot.

I’m just gathering thoughts for how to raise another £1500 for TKOE to mark 5 years in Sept and also because that way TKOE and Team Kilburn will have raised £50k. So in these hazy restful days of summer, have you got anything to suggest??

Because cancer carries on and people carry on needing help and support. 🙂 🙂

It’s good to be back.

Jo xx

Rosie – not forgotten

20 Feb

Hah! Thank you for the response to the Junior Doctors post. I’ve had a massive response and it’s good to know it’s struck a chord.  The thing is, this is our NHS. We all fund it and have a stake in it. It’s worth showing our support and lobbying where we can.

Now then, surprises are lovely things. These last few weeks there have been a lot of Rosie memories and mentions from all sorts of quarters. A particularly excellent contact came yesterday though from Peter Branson who is the Chief Executive ( is that his title? He’s Very Important, anyway.) of Forget Me Not Childrens Hospice in Yorkshire.

Rosie was very proud of her Yorkshire roots – she was born there and was half Yorkshire. And there is a glass brick in the hospice celebrating Rosie after some TKOE fundraising. Peter showed us round some time ago, but I never expected to get this – what follows are his own words:

“Hi Jo

I hope you and the family are well. It has been a very long time since I have been in touch, but I wanted to drop you a quick email. I have meant to for a while but something prompted me to do so now, as I will explain below.

I often think about something you said a long time ago about Rosie – that one of her fears was that she would be forgotten. I just wanted to let you know that in this small corner of Yorkshire her memory is still very much alive. The block in our Celebration Wall with her words on still shines brightly – and whenever I am showing the wall to anyone I always mention Rosie. But as well as that I thought I would let you know that her name is going to be mentioned next Monday somewhere special. You may have seen that a couple of years ago Princess Beatrice became our Patron – on Monday she is hosting a small lunch at Buckingham Palace for us (only the 2nd one she has done) and I am planning to mention Rosie in the speech I am giving at the event. I didn’t know her so I won’t be saying much about her, but I will be mentioning her briefly – and I thought I would let you know ”

Isnt that just so thoughtful and unexpected and well, just , heart-warming? So, a public thank you to Peter. I hope Monday goes well.

😀😀😀

Jo

 

 

 

Junior doctors

15 Feb

I’ve wanted to write in support of junior doctors for a while. Then yesterday Facebook kindly shared memories of 14th Feb over several years.  This included Rosie having her first internal bleed. Very romantic. So I read her blog for those days. And it reminded me

of the very sweet junior doctor in A and E. Who kept Rosie calm and interested. Who arranged tea and toast for me, at which point I knew this was pretty serious. Who patiently organised a bed on a ward. Who dealt with many more people. And who, several days later, came to find Rosie to see how she was, because she had been so worried about her. Who said hospital was no place for a young girl like Rosie, even though she was not much older herself.

Of the junior doctor who made the call on the night of Rosie’s biggest bleed that whilst she was terminally ill, she was only 19 and it was worth fighting for her to have a bit longer.

Of the junior doctors who answered that call and came in with the consultant that Sunday night, who were so eager and keen to do what they could. Who made Rosie laugh and told her what they’d really like to be doing at 3.00 am in the morning.

Of the junior doctor who was on duty the night Rosie died. Who treated us with such compassion. Who decided Rosie shouldn’t be hooked up to machines for her last hours. Who wept when she had to confirm there was no longer a heart beat.

At the time, it hadn’t really registered that they were junior doctors. But they were. All of them working in those death/life early morning hours, always on a weekend. Taking decisions which gave us those wonderful extra weeks with Rosie, and creating a place where Rosie felt safest. Not at home, but surrounded by people around the age she would be now.

Don’t you think the jobs they do, and the decisions they make are worth more pay than they would earn in a supermarket? Don’t you think they deserve all of us to nurture them and to make their working life as safe as it can be, so they can give the best treatment they can? Don’t you think the government should listen? I know I do.

Jo xx

 

Inspirational-Part 2

24 Jan

Have been loving the newspaper articles about Alice Running for Rosie and Alice’s own story, this week. Drop into the online edition of the Ross Gazette to see what I mean. (This is not me being lazy by not putting a link in – I’m getting you to exercise your internet search muscles 😉).

I have though got another piece of news. We were contacted by Simona from Vienna last week. She was asking if it would be at all possible to link Rosie’s blog to the new website of the new International Cancer Epigenetic Society which launches next month, as it is so inspiring. Woah!

Chris and I always have a brief or long moment at times like these of wondering if it’s been noticed that Rosie has died, and how do we break the news and do people with cancer or an interest in cancer feel uninspired by the fact that Rosie’s story didn’t end with cures or remissions or anything like that.

But then we realised she had contacted me, rather than Rosie, and that Rosie and we found strength and inspiration from loads of different people’s stories and outcomes. And on top of that is the fact that Rosie’s words are inspiring. So of course we said yes.

Epigenetics is a pretty interesting and looking to be promising approach to cancer, so it’s good to be linked to that too. And we were pretty touched that they asked. Not everyone does.

Go Rosie, eh?

Jo xx

 

Inspirations – Part 1

17 Jan

Hello there everyone. How are you all doing? I’m working my way through a VERY long list of things to do, and have broken off to post this. Because this is a week of inspirations.

The first inspiration is a person. Her name is Alice Hibberd, and she’s going to run the London Marathon. She’s running it for Rosie, and she’s running it to raise money for our lovely friends at Hope Support Services. She’s running it because she wants to give something back to Rosie. So here’s what she means by that, in her own words:

“I am raising money for Hope Support Services on behalf of The Knock On Effect. (https://theknockoneffect.wordpress.com/)

Since Rosie created The Knock On Effect in 2009 they have raised around £47,000 for cancer charities in the UK.

This year they are aiming to get to the £50,000 mark, and I am going to help them.

Here’s why. . .

In 2011 I had just got home from handing in a uni assignment at 10 in the morning, still drunk and in the clothes from the night before. I checked my Facebook to find a status on my newsfeed that in all honesty, changed my life.

The status was an angry one-
Someone angry that her Facebook friends were choosing to destroy their bodies with alcohol and fags, whilst she was fighting a rare form of cancer, which had recently turned terminal. I couldn’t help but feel instantly guilty-Rosie Kilburn was completely right. Although I was not the wildest of students, I was at a point where I was failing my course, going out two or three times a week and not looking after myself. .

I went back through all of her blog posts, Although we were Facebook friends, we hardly knew of each other, I don’t think we had ever spoken. It turned out that whilst I had been drinking my liver away, Rosie had been fighting cancer for two years in an extraordinary way: she had set up her own blog, a charity art auction and her own not for profit business to raise thousands of pounds for cancer charities.

Rosie’s story gave me the kick start I needed. I started looking after myself; I started running, I joined a gym, I went out less, I studied more, I graduated, I got a job. I put my health first; both physically and mentally. Those who know me well will agree with me when I say that my life has improved dramatically & Rosie inspired me to do so.

But of course, Rosie would have given anything to have those luxuries- yet she left this world in 2009, aged 19. Only 15 hours before she died, she renewed the domain for her blog- she wanted her story to live on through her family, friends, and the thousands of people who like me have been changed by Rosie’s story.

I’ve always wanted to give something back to Rosie, and getting in to the London Marathon has given me the perfect opportunity.

Over the next 16 weeks I will be out in all weathers training for the 26.2 miles. 

Any contribution to sponsor me would be greatly appreciated. 

If you are interested in Rosie’s story please take a few spare minutes to look at the amazing work that ‘The Knock On Effect’ have been up to.

https://theknockoneffect.wordpress.com/”.

What an inspiration Alice is, herself. In a lovely unexpected connection, she works in the department at Gloucestershire College where Cal was, too. So hello to all of those lovely people too. You certainly helped him on his way to being the person he is now.

Now, Alice needs all our help, so if anyone would like to generously sponsor her, I’ll put the link at the bottom. I can see some of team TKOE already have done, so thank you for that. We’ll be following Alice’s training progress . This is soooo exciting. And a lovely piece of news for a Sunday evening.

……….

Hmm, the URL isn’t loading for her sponsor page. So, take yourself along to:

https://justgiving.com/Alice-Hibberd

Happy times

Jo xx

 

 

Monkeyface: you rock! From gigs to crochet.

7 Jun

What a night. What a turnout. What music. What tea towels. What generosity. It was such a good gig last night. The sun shone; the people at the venue were lovely; the band were fab and everyone who came was so supportive. Almost £300 was raised for TKOE which is an amazing amount – we are so pleased. Which means we are around £500 into our £3k target for this year. 🙂 🙂

We’ve got a great long roll call of thank yous, so here goes:

Monkeyface themselves, present and past members – Paul Alcock, Julian Avery, Tim Atkins, Paul Hamer, Dave Ganner, Andy Clarke and Ruth Troughton;

Dave Draper of Tower Studios – Producer and Engineer;

Tim and Mandy Pellatt at CordialAV who produced and edited the video and also did the press comms;

Darren Sawyer for being the official photographer – can’t wait to see the shots;

Everyone at SevernFM who have been pushing the single, and continue to do so;

The Citizen and the Echo for promoting the gig, single and video;

The Wheatsheaf, Leckhampton for being such a good place to hold the gig;

Lucy and Jane Henderson for putting Paul in contact with us;

Mike Arnold, chief TKOE elf for designing the artwork and doing all the tricky webstuffy things, and making it look easy;

Rosie for giving us all the inspiration to carry on.

We’d especially like to thank Paul Alcock for approaching us with the idea, putting so much into this, sticking with us when we were going through tricky times and couldn’t really think about nice things, and generally being a brilliant person. This has really been a knock on effect in action, just like Rosie wanted it to be.

Next thing then is to get those singles sales going. Our new best friend in America, Barbie, is on the case for the digital distribution so we’re just waiting, waiting , waiting for this to reach the top of the iTunes queue, plus Amazon and all the others. Once it does, we’ll let you know. And then we want to see if we can get 1,000 downloads. Cos we like setting targets. Because all of you are really good at beating targets. 🙂 Thanks to those of you who have already downloaded from the CDBaby site.

So, while we’re waiting, and  Monkeyface are having a week off to recover (it’s the rock and roll lifestyle, you see), is there anyone reading this who can crochet? I’ve got a bit of a TKOE experiment that I need a small bit of help with.

Jo xx

You coming to the Monkeyface gig tomorrow?

5 Jun

It’ll be a good night out in Cheltenham and all for a brilliant cause. So come along. Pleeeeassse. 🙂 🙂

In other news, you should be able to download from iTunes and Amazon very soon indeed. In my music distributer guise I have been liaising with a digital inspector in the US of A called Barbie – yes, this is true – and I have just had to approve the full digital release. I felt very powerful for a moment. 🙂

Thank you for all the comments on the song and the video. It means a lot.

Jo xx

Monkeyface gig and our first ever song for TKOE

31 May

Hello hello

I was so excited a few days ago, I realise I didn’t properly explain what was going on. So unless you follow the blog avidly, you’d have been a bit confused. I know this, because people have said.

Soooo… to explain from the beginning.

A song in memory of Rosie

A cousin of the mum of a friend of Rosie’s – it’s ok, it doesn’t get more complicated than that – approached us ages and ages ago. He’s called Paul, and he’s the singer in a local band called Monkeyface. You can find them on Facebook – just go onto Facebook and search for Monkeyface. He and the band were really interested in releasing a charity single, to raise money for The Knock on Effect. So, with the help of some amazing people, the band recorded a song, called You’re Amazing. Chief Designer Mike did a design for it. And another group of lovely people did a video. If you look on the blog, you can see the link to buy the song, which  is available for download now at CDBaby (it’s just making it’s way through the gnomes at iTunes, Amazon and so on, so will be available through all those avenues too) Every penny raised goes to TKOE. Which is fantastic. And incredibly generous.

In case you can’t see the sidebar with the details on, you can get it from here:  You’re Amazing by Monkeyface at CDBaby

The gig

To launch the single, Monkeyface are playing a gig – their first one for a couple of years – at The Wheatsheaf, 283 Old Bath Road, Leckhampton, Cheltenham, GL53 9AJ. The link to the event and venue is on the blog page, next to this post. Just click the monkey. 🙂 🙂

It’s on Saturday 6th June 7.30-11.00pm and tickets cost an amazingly good value of £3.00 on the door. There will be some TKOE goodies to go with the tickets, as well. Which can’t be bad.

So, all you local TKOE supporters, it would be fabulous to see you there, so we can raise more money for this year’s TKOE charities, Hope Support Services and the Teenage Cancer Trust.

You know, there are so many kind people in the world.

Jo xx

@EarlMortimer from @knockoneffect – you are all fabulous. Thank you :)

22 Sep

Chris here. Don’t worry, Jo’s fine; it’s just my turn! I normally leave her to do the public- facing TKOE work. She’s better with words. And people. And stuff generally. I mostly carry boxes and go to the post office. It’s better that way. Not that we don’t share the same sentiments – she just says it better.

Anyway, today TKOE was invited to meet the wonderful young people of Earl Mortimer School in Leominster. They’d heard Jo speak about Rosie, grabbed the message with both hands and started fundraising. The SMSC group organised an American day, charged other students to come to school and sold them cakes, raising a fabulous £440 for us. Not only that, but they invited me to school to meet them, gave me lunch, provided some very useful market research, asked intelligent questions and had run a ‘make a design for TKOE’ competition which yielded some brilliant designs for future products. Impressively, I then forgot to bring the designs back with me, but that will be sorted out (probably by Jo. Hmm). I then had the pleasure of being interviewed for the school radio station by Tilly and Demi, two rising young broadcasting stars in the making. (You know Tilly – she did a guest blog, and she’ll be doing another soon, so look out for it). Their professionalism shone through even when they were let down by the technology. They got it sorted in the end and as soon as we get it we’ll post a link so you can listen to my adenoidal tones as I burble nonsense in response to their carefully crafted questions.

The fundraising is wonderful, but what’s also brilliant is that the young people I met today were inspired by Rosie, three years after she died, to put in what must have been loads of work for the benefit of people they don’t know, and will never meet. Young people today, eh?

So thanks, Earl Mortimer School: Adrian and Kelly and Tilly and Demi and everyone in the SMSC group. It was lovely to meet you all.

Chris

Guest blog, guest blog – thankyou @EarlMortimer and Tilly

10 Jul

Earl Mortimer College has always been a place in which both students and teachers actively try to help those outside of the College with the intention of demonstrating that the wider community and their needs are just as important as our own. Whether it be a Macmillan Coffee Morning, a Children In Need cake sale or a non-uniform “Feel Good Friday”, we always manage to dig deep and pull it out of the bag to raise vast amounts of money for amazing causes. This year alone, we have been able to raise thousands of pounds in order to help the sick, the vulnerable, the elderly, and many other groups in society, both at home and in faraway places, to get the all-important care and devotion to all of those who are not as lucky as ourselves. With the end of the academic year fast approaching, the Spiritual, Moral, Social and Cultural group had one last, very hard decision to make before kicking off their SMSC boots for the summer… what was the last “feel good” fundraiser of the year going to be in aid of?

After careful research and deliberation, the group came across the story of local girl Rosie Kilburn, who sadly died of cancer, and decided that her organisation, The Knock on Effect, was the worthy cause they were looking for after being inspired by Rosie’s attitude and strength throughout the tribulations she had to face in her life. However, her story is not one of doom and gloom as you may be thinking. Rosie was a fighter, determined to not only combat her illness, but to help others deal with cancer and its effects in the process. She was definitely not a victim of her disease, and she wanted to get rid of the horrid taboo surrounding ‘the big C’ and rather concentrate on the bigger picture; what people could do to help.

Rosie’s mother, Jo Davidson, was our guest speaker at the 2014 Annual Academic Awards evening earlier in the year and shared precious memories of her daughter with many of our students and their families during her speech. This has given us a real insight into the kind of person Rosie was and as a result, many students possess the same admiration for Rosie as the SMSC team do already!

After losing her battle to the disease, The Knock on Effect lives on as an independent organisation in dedication to Rosie and her efforts. It continues to deliver the help others may need to come to terms with their illnesses and encourage progression, rather than ignoring the problem and locking themselves away from the outside world. The Knock on Effect acts on Rosie’s behalf to organise fundraisers to carry on her work, and EMC are proud to say that we are able to take part in fundraising for The Knock on Effect on Friday 11th July.

Students will focus on the wide theme of the spiritual, moral, social and cultural aspects of America and all lessons will be tailored according to this. Cakes will be available to purchase during breaktime and lunchtime on the Friday and there will be an all-American themed lunch in the canteen to accompany this. Furthermore, students can enjoy a round of Extreme Golf on the field, participation will be encouraged and all proceeds will go to The Knock on Effect.

Naturally, there is a US-themed clothing policy that will be enforced for one day only; EMC students have been asked to take advantage of this and dress to impress in all their American themed finery!

External competitions, such a designing a logo or art piece to be used by The Knock on Effect, will be running in conjunction with events at College. The best entries will be shortlisted, and given to Rosie’s organisation to be used on merchandise, such as T-shirts and mugs. They will also be used to auction off later in the year in a bid to raise even more money and enable The Knock on Effect to carry on the terrific work they do.

The SMSC group have high hopes for the drop down day, and are urging all students to get behind it to make Friday 11th a massive success and raise awareness for this local organisation. When I asked Miss Anderson (who is head of the SMSC group) about this day she said:

“I am really excited about this. The students will get to experience exciting lessons and learn about a different culture. It is also a fantastic opportunity for them to engage with each other and strengthen the bonds here at EMC. I am really proud that so many students have thought about why we are doing this and the impact it will have on helping others. The students really took to Rosie’s story and were inspired by her determination and humble nature. This day is about celebrating her achievements and pushing others to break the taboo surrounding illnesses such as cancer. Days like this encourage community spirit and that is something that this College is full of!”

I was really excited when Miss Anderson asked me to write this blog! I hope that by seeing what we have done here at EMC other colleges will be encouraged to fundraise more and help their local organisations help the community. BE INSPIRED, I was!

Tilly Stanik (Year 12)